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CAREGIVERS / CARE PARTNERS INFORMATION
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“There are only four kinds of people in the world –
those who have been caregivers,
those who are currently caregivers,
those who will be caregivers and
those who will need caregivers”.By Rosalyn Carter
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Show your appreciation of your caregiver or your care partner and donate to the Columbia Parkinson's Support Group in their honor.
Mail your donation by check with the name of the caregiver or your care partner you are honoring, and your personal message to them. We will send them a letter acknowledging your donation in their honor, with your personal message.
Columbia Parkinson's Support Group
c/o Carol Baker, Vice President / Treasurer
2 Arrow Lake Road
Irmo SC 29063
If you have any questions or need additional information about donating, please contact:
Carol Baker, Vice President & Treasurer
Telephone 803-781-6193
Email: caroltbaker@bellsouth.net
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There are numerous websites with resource information for Caregiver's / Care Partners. There is Information about giving care, and most important about Caregiver's / Care Partners receiving care themselves. Caregivers and Care Partners "always" need to remember and remind themselves that they need take care of themselves first mentally and physically. If the Caregiver / Care Partner becomes sick, ill, depressed, etc. then they cannot or are unable to care for their loved one.
CAREGIVER / CARE PARTNER BOOKS |
| "Passages In Caregiving" by Gail Sheehy |
| "Parkinson Disease: Caring and Coping" by Susan Imke, Tudy Hutton, and Susan Loftus - Order from National Parkinson Foundation for FREE www.parkinson.org/Parkinson-s-Disease/PD-Library/NPF-Publications |
| "Parkinson's Disease - The complete guide for patients and caregivers" by Abraham N. Lieberman, M.D. and Frank L. Williams |
| "Caring for the Parkinson Patient: A Practical Guide" (Paperback) by J. Thomas Hutton (Editor) |
| "Caring with Courage and Compassion" by Susan Hamburger |
| "The Comfort of Home for Parkinson Disease: A Guide for Caregivers" (Paperback) by Maria M. Meyer |
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| "Caregiving is a loving gift from the heart, but it is also very challenging and demanding. Although caring for someone you love can be very rewarding, it is well known that caregiving can be a tough role, compounded by limited information and resources." Author Unknown |
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Parkinson's Disease Caregiver Commentary
This website was developed specifically for people who are current or future caregivers to patients with Parkinson's disease.
"We know it is not easy to accept the diagnosis of a chronic illness that relentlessly progresses. Questions flood your mind. Do you die of Parkinson's? What is the prognosis? How long can the patient continue to work? He has changed so much over the past year or two. What took us so long to recognize that something was wrong? Will changes in behavior continue to increase? Crowding these questions are silent pleas for help. The spectre of what lies ahead seems so frightening!"
"Exploring this site, you will find that there is an extensive support network available to you; that Parkinson's is most often an extremely manageable disease; and that with each passing day, the prospect for ever more effective and long-lasting treatments becomes more certain." http://www.myparkinsons.org/
Comment from Dottie - This would be a very good website for both Parkinson patients and caregivers - they have a lot of resources available.. There are a lot of personal stories, as well as practical information about Parkinson's disease. I also enjoyed reading some of the personal stories on the Caregiver Discussion Forum. This site also has a page with a GREAT list of Parkinson books for both the patient and the caregiver. Click Here
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"You may only be one person to the world,
but you may also be the world to one person."
Author Unknown
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Family Caregiver Respite Voucher Program
The South Carolina Alzheimer's Chapter provides short-term respite--time away from caregiving responsibility--for full-time family caregivers. A voucher for up to $500 worth of care is available each year. This program is possible thanks to a grant through the SC Department of Mental Health.
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NOTE: This program is also available to Parkinson patient caregivers! You can use the same forms on the Alzheimer's website. Members of our support group have received respite vouchers. The Family Caregiver Respite Voucher Program is designed to provide relief to caregivers to lessen the physical, emotional and financial burdens associated with Alzheimer’s and Parkinson's disease. Full time caregivers provide 24 hour a day care for their loved ones often without taking a break. As a result, the caregiver’s own physical and emotional health often suffers.
Evidence suggests that elderly spousal caregivers who experience caregiver stress have a mortality rate 63% higher than average. High caregiver stress leads to the increased need to seek long-term care placement for the individual with Alzheimer’s disease. With a respite voucher, family members are able to arrange care through approved home care agencies, adult day care, or temporary placement in a long term care facility. The approved agency or facility will bill the association for up to $500 worth of services. The respite program is not designed to pay for services on a long term basis and may not be applied retroactively. The voucher may not be used for private sitters.
CLICK HERE To Learn More and Obtain Application Forms
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Special Online Seminar for National Family Caregivers |
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The following information has been provided by the Parkinson's Disease Foundation
Do you find that because of Parkinson’s symptoms, such as decreased facial movements or speech problems, that you have difficulty communicating with and showing emotions to your partner? As a partner or health care professional, do you have trouble interpreting these signs?
Join PDF by phone or online for “What’s Missing? Communication and the PD Partnership,” on Tuesday November 30 from 1:00 – 2:00 PM ET. In this seminar, Teresa Deshefy-Longhi, DN. Sc., R.N., of Fairfield University in Connecticut, will provide tips on tackling communication issues that may arise between a person with PD and his or her care partner.
This is the first in our new series of PD ExpertBriefings and the second annual online seminar designed to recognize Family Caregivers.
Register now for PDF’s online seminar on “What’s Missing? Communication and the PD Partnership.” Learn More & Sign Up
Past Online Seminars, Watch Now! Browse PDF’s library of more than 10 seminars, covering nutrition, the PD pipeline, legal issues and more. You can watch these at your convenience, 24 hours a day, seven days a week. Browse Past Online Seminars
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Caring for the Caregiver - From The Northwest Parkinson's Foundation Wellness Center
The following information has been provided by the Northwest Parkinson's Foundation
We are thankful for the help, support and guidance that they bring. Parkinson’s affects the whole family and we sometimes forget about the health and well being of the caregiver. As a caregiver, you may feel overwhelmed or stress at any stage of Parkinson’s. Your health and mood may be at risk.
We are all caregivers, care partners or need a caregiver some time in our life in our life. Therefore this edition, Caring for the Caregiver, is for all of us.
Visit the Northwest Parkinson’s Foundation Wellness Center, your place for health, hope and healing. Become a member of this community to learn about lifestyle changes, therapies and professionals that can help the patient and their caregivers along the Parkinson's journey. Sign up to receive Wellness Center updates. Sign Up Here
Visit the Northwest Parkinson's Foundation website and sign up to receive free subscriptions
to the latest world news and event news about Parkinson's.
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