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ODDS-and-ENDS INFO - IF IT DOESN'T FIT ANY OTHER CATAGORY - IT GOES HERE
What do we do with recommendations about different items and resources that may be of interest to our Parkinson's community but they don't fit into any particular category? We put them here.
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LSVT Therapy Helping Some Parkinson's Patients |
Sit down. Stand up. Reach up. Reach down. Take big steps. A new physical therapy program for Parkinson's disease patients is retraining their brains and bodies to make the expansive movements many have lost because of tremors, stiffness and muscle atrophy. The treatment emphasizes big, repetitive motions and operatic voice exercises to help patients speak louder, correct their posture and walk with agility instead of taking baby steps. CLICK HERE TO READ MORE
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Good news ~ Free Antibiotics ~ Save money and feel better
The following information is provided by Publix Pharmacy http://www.publix.com/pharmacy/Home.do
At Publix, we're always looking for ways to make your life easier. And helping you manage healthcare costs is no exception. That's why we're pleased to tell you that some commonly prescribed generic oral antibiotics are free at your neighborhood Publix Pharmacy. To take advantage of this great deal, all you have to do is bring in your prescription for any of the medications below, and we'll give you up to a 14-day supply at no cost to you—regardless of your prescription insurance provider or the number of prescriptions you need filled.
- Amoxicillin
- Ampicillin
- Cephalexin (capsules and suspension only)
- Sulfamethoxazole/Trimethoprim (SMZ-TMP)
- Ciprofloxacin (excluding Ciprofloxacin XR)
- Penicillin VK
- Doxycycline Hyclate (capsules only)
- Erythromycin Stearate and Ethylsuccinate
For more information on this free antibiotic drug program http://www.publix.com/pharmacy/Free-Antibiotics.do
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"Dance for PD"
by the
Mark Morris Dance Group
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Photo obtained from "Dance for PD" website. |
Photo obtained from "Dance for PD" website.
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Dance for PD® is an on-going collaboration between the world known Mark Morris Dance Group (MMDG) and the Brooklyn Parkinson Group (BPG), a chapter of the National Parkinson Foundation. MMDG/BPG started offering free dance classes for people with Parkinson's in 2001 after BPG's Executive Director Olie Westheimer approached MMDG with the initial idea for a class.
Since 2005, Dance for PD® has offered dance classes for people with Parkinson’s disease in Brooklyn, New York and, through their network of partners and associates, in more than 40 other communities around the world. In Dance for PD® classes, participants are empowered to explore movement and music in ways that are refreshing, enjoyable, stimulating and creative. An on-going collaboration between the Mark Morris Dance Group and the Brooklyn Parkinson Group—a chapter of the National Parkinson Foundation—the Dance for PD® program also provides teacher training and nurtures relationships among other organizations so that classes based on our model are widely available.
Here are some links to see what Dance for PD® does for Parkinson patients. The PD patients look like they are enjoying dancing and having fun!
http://markmorrisdancegroup.org/resources/media/2-performances/11-why-dance-for-pd
http://www.pbs.org/news hour/bb/health/july-dec10/parkinson_12-09.html
http://www.youtube.com/watch?v=brHD72djUjg
Please visit http://markmorrisdancegroup.org/the_dance_center/outreach and scroll down to almost the bottom of the page to read more about this remarkable program of dance.
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Medication Alert! - Amantadine Use May Impact Vision
Amantadine is a drug frequently used in early Parkinson's Disease. A study published in the 2010 June issue of the journal Ophthalmology shows that long-term use of Amantadine in patients with Parkinson's disease can significantly affect or damage corneas. If you have had long term Amantadine use, please consult your PD doctor and/or your ophthalmologist - take a printed copy of this article with you just in case your doctor is unaware of these studies.
"Amantadine affecting vision" was used for our Google search, resulting in many websites having information about studies regarding the effects of Amantadine on PD patients. Below are two other articles about Amantadine impacting vision. http://www.sciencedaily.com/releases/2010/06/100601114629.htm
http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=24461
Please note that this information is being provided as "Information Only"; and is meant to help you make knowledgeable decisions regarding Parkinson's care and treatment.
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Parkinson's Disease Caregiver Commentary
This website was developed specifically for people who are current or future caregivers to patients with Parkinson's disease.
"We know it is not easy to accept the diagnosis of a chronic illness that relentlessly progresses. Questions flood your mind. Do you die of Parkinson's? What is the prognosis? How long can the patient continue to work? He has changed so much over the past year or two. What took us so long to recognize that something was wrong? Will changes in behavior continue to increase? Crowding these questions are silent pleas for help. The spectre of what lies ahead seems so frightening!"
"Exploring this site, you will find that there is an extensive support network available to you; that Parkinson's is most often an extremely manageable disease; and that with each passing day, the prospect for ever more effective and long-lasting treatments becomes more certain." http://www.myparkinsons.org/
Comment from Dottie - This would be a very good website for both Parkinson patients and caregivers - they have a lot of resources available.. There are a lot of personal stories, as well as practical information about Parkinson's disease. I also enjoyed reading some of the personal stories on the Caregiver Discussion Forum. This site also has a page with a GREAT list of Parkinson books for both the patient and the caregiver. Click Here
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Muhammad Ali Parkinson Center and Movement Disorder Clinic
Offering Free E-Learning On-Line |
These services of online courses aim to make learning about Parkinson's disease and how to effectively manage it as engaging as possible. Currently there is 1 course available: Parkinson's Disease 101. This course has 3 modules, as well as an introduction to the Muhammad Ali Parkinson's Center and an evaluation. The expected duration of the course is 40 minutes and provides an overview of Parkinson's disease, dealing with diagnosis, symptoms and introduction to treatment options. Upcoming modules include medication, Deep Brain Stimulation surgery, exercise and nutrition. To access e-learning, simply log on to www.maprc.com and look for Learning Modules.
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Good news ~ Free Antibiotics ~ Save money and feel better
The following information is provided by Publix Pharmacy http://www.publix.com/pharmacy/Home.do
At Publix, we're always looking for ways to make your life easier. And helping you manage healthcare costs is no exception. That's why we're pleased to tell you that some commonly prescribed generic oral antibiotics are free at your neighborhood Publix Pharmacy. To take advantage of this great deal, all you have to do is bring in your prescription for any of the medications below, and we'll give you up to a 14-day supply at no cost to you—regardless of your prescription insurance provider or the number of prescriptions you need filled.
- Amoxicillin
- Ampicillin
- Cephalexin (capsules and suspension only)
- Sulfamethoxazole/Trimethoprim (SMZ-TMP)
- Ciprofloxacin (excluding Ciprofloxacin XR)
- Penicillin VK
- Doxycycline Hyclate (capsules only)
- Erythromycin Stearate and Ethylsuccinate
For more information on this free antibiotic drug program http://www.publix.com/pharmacy/Free-Antibiotics.do
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An Interesting Article About "When the Assisted-Living Bill Balloons"
From The New York Times by Patrick Egan - "This fall, my father sat down for a semi-annual assessment with staff members at his assisted living facility in Tinton Falls, N.J. They decided his condition — at 72, he has advancing Parkinson’s disease — necessitated an upgrade to the next level of care. The meeting yielded an upgraded bill, too: a nearly 18 percent bump, about $12,000 a year...."
While it is difficult for some to read this article, the article discuses some of the difficulties that Parkinson patients, the elderly, and those with disabilities face regarding the cost of living in an assisted living facility. Some useful suggestions are offered - such as obtaining the services of a reputable geriatric-care manager or getting in touch with a state ombudsman for long-term care. CLICK HERE to read the full article on the Northwest Parkinson's website.
The Northwest Parkinson's website's FREE bimonthly newsletter is filled with the latest in education, science and insights. Sign Up Here
A place to start looking for resources are listed on our web pages of Doctors & Medical Providers We Use -and- Government Services Available
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FREE ON-LINE EDUCATION
Are You A Parkinson's Patient, Caregiver, Family Member, Neighbor, Medical Provider, or Just Interested In Parkinson's? |
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You Can Go Back To School And Learn About How To Care For Yourself and/or Parkinson Patients In Your Pajamas!
Parkinson patients, their family, their caregivers, and anyone who has an interest in learning more about the care of Parkinson patients can take this course!
Parkinson's Across the Lifespan: A Roadmap for Nurses is an online course designed by Parkinson’s nurse specialists to help other nurses better understand how to deliver comprehensive care to people and families living with Parkinson’s disease (PD). To learn more about this course go to http://support.pdf.org/nursing
| NOTE: Our opinion is that Parkinson patients, their family, their caregivers, and anyone who has an interest in learning more about the care of Parkinson patients would receive a benefit from this course! We encourage you to share the information about this course with any of your medical caregivers (doctor's offices, nurses, etc.) so that they will learn more about how to care for Parkinson patients and also to make them more aware of what Parkinson's disease is. |
Who should participate: This course is designed for nurses who want to better understand Parkinson’s in order to better care for the growing population of people living with the disease, and it is most suitable for nurses in long-term care, acute care, recent nursing graduates or other nurses who want to improve the care they give to people living with PD. A member of our support group has recommended this course ---
"I plan to distribute information sheets about the courses to nurses I will be encountering as I progress through my upcoming surgery and rehab. So far I receive only blank stares from nursing professionals when I mention PD and I would like to replace them with nods of acknowledgement."
When: You can view this course online 24 hours a day seven days a week from an Internet-connected computer.
Cost: FREE
How: Watch the four sessions that make up the course, each of which is approximately one and a half hours in length. Following each session, take a brief exam to test your knowledge of Parkinson’s. NOTE: For professional medical caregivers, after completing all four sessions and exams, you’ll be eligible for up to 7.5 CEUs. Please help promote this online course by emailing the link and sharing above information to others who may be interested: http://support.pdf.org/nursing
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PD Clinical Trial of Interest
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The Communicative Participation Research Project
A research study about the impact of PD on participation in daily communication activities.
Volunteer Research Participants Are Still Needed! |
This study is for adults who have experienced speech, language or cognitive changes as a result of Parkinson's Disease.
Carolyn Baylor, a speech pathologist at the University of Washington in Seattle is conducting a research study about the impact of PD on participation in daily communication activities. This study is for people who have experienced changes in their speech, language or cognitive functions as a result of PD. The study involves about an hour of filling out questionnaires online or on paper, and can be done at home.
You will receive a $20 check or Amazon.com gift card for completing the questionnaire - You can work at your own pace, at home - Your participation is voluntary - You are free to stop at any time - Your participation is NOT related to medical care you may be receiving at any healthcare facility - Your participation is NOT related to your involvement in any support or advocacy groups.
If you wish to participate, Phone: 206-221-3563 -and- Leave a voice mail with your name - your diagnosis (Parkinson's) - your preference for using paper or online web questionnaire - and- your contact information (name, email address or mailing address). Your diagnosis is needed because the same study is being done with people with other diagnoses, and the questionnaires are slightly different based on your diagnoses of Parkinson's Disease.
More information about this study can be found on http://staff.washington.edu/cbaylor
If you are interested or want to learn more - Contact:
Carolyn Baylor, PhD, CCC-SLP -Acting Assistant Professor - University of Washington - Box 356490; University of Washington; Seattle WA 98195 -or- Email: commpart@u.washington.edu (Please remember they cannot guarantee the confidentiality of information sent over email)
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PD Clinical Trial of Interest |
What Is PPMI?
Parkinson's Progression Markers Initiative (PPMI) |
The Parkinson's Progression Markers Initiative (PPMI) is a landmark five-year clinical study aiming to identify biomarkers of Parkinson's disease progression, supported by The Michael J. Fox Foundation. People recently diagnosed with PD who are not currently taking medications are needed — and so are individuals who don't have PD (or even a close relative with PD) to serve as controls. LEARN MORE - CLICK HERE
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Be Safe!
Be Careful!
Be Informed!
Be On Guard!
Many Parkinson patients and their caregivers utilize the internet for information, education, social networking and sending email. All too often identity theft can happen quickly.
Onguardonline.gov has practical information from the federal government and the technology industry to help you to be on guard against Internet fraud, secure your computer, and protect your personal information. |
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Family Caregiver Respite Voucher Program
The South Carolina Alzheimer's Chapter provides short-term respite--time away from caregiving responsibility--for full-time family caregivers. A voucher for up to $500 worth of care is available each year. This program is possible thanks to a grant through the SC Department of Mental Health.
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NOTE: This program is also available to Parkinson patient caregivers! You can use the same forms on the Alzheimer's website. Members of our support group have received respite vouchers. The Family Caregiver Respite Voucher Program is designed to provide relief to caregivers to lessen the physical, emotional and financial burdens associated with Alzheimer’s and Parkinson's disease. Full time caregivers provide 24 hour a day care for their loved ones often without taking a break. As a result, the caregiver’s own physical and emotional health often suffers.
Evidence suggests that elderly spousal caregivers who experience caregiver stress have a mortality rate 63% higher than average. High caregiver stress leads to the increased need to seek long-term care placement for the individual with Alzheimer’s disease. With a respite voucher, family members are able to arrange care through approved home care agencies, adult day care, or temporary placement in a long term care facility. The approved agency or facility will bill the association for up to $500 worth of services. The respite program is not designed to pay for services on a long term basis and may not be applied retroactively. The voucher may not be used for private sitters.
CLICK HERE To Learn More and Obtain Application Forms |
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Caregiver/Care partner Resources
"Caregiving is a loving gift from the heart, but it is also very challenging and demanding. Although caring for someone you love can be very rewarding, it is well known that caregiving can be a tough role, compounded by limited information and resources." Quoted from the Fall 2010 Southwest Parkinson News
For more information on caregiver resources CLICK HERE |
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Recognizing Caregivers who Participate in PD Research
We join others who recognize the millions of spouses, family members, friends and other loved ones who are deeply affected by Parkinson's disease (PD). Many of these individuals have chosen to show their caring and support by choosing to personally participate in a Parkinson's clinical study.
We acknowledge the contributions made to the health and well-being of those they love by making the decision to become a clinical study participant.
If you would like to learn more about clinical studies that are seeking volunteers without PD Click Here.
The above information has been provided by PDtrials - where you can find up-to-date information on Parkinson’s disease trials currently enrolling participants in the U.S. and Canada. They also have an email newsletter that you can sign-up for on their website. |
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Special Online Seminar for National Family Caregivers |
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The following information has been provided by the Parkinson's Disease Foundation
Do you find that because of Parkinson’s symptoms, such as decreased facial movements or speech problems, that you have difficulty communicating with and showing emotions to your partner? As a partner or health care professional, do you have trouble interpreting these signs?
Join PDF by phone or online for “What’s Missing? Communication and the PD Partnership,” on Tuesday November 30 from 1:00 – 2:00 PM ET. In this seminar, Teresa Deshefy-Longhi, DN. Sc., R.N., of Fairfield University in Connecticut, will provide tips on tackling communication issues that may arise between a person with PD and his or her care partner.
This is the first in our new series of PD ExpertBriefings and the second annual online seminar designed to recognize Family Caregivers.
Register now for PDF’s online seminar on “What’s Missing? Communication and the PD Partnership.” Learn More & Sign Up
Past Online Seminars, Watch Now! Browse PDF’s library of more than 10 seminars, covering nutrition, the PD pipeline, legal issues and more. You can watch these at your convenience, 24 hours a day, seven days a week. Browse Past Online Seminars
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Caring for the Caregiver - From The Northwest Parkinson's Foundation Wellness Center
The following information has been provided by the Northwest Parkinson's Foundation
We are thankful for the help, support and guidance that they bring. Parkinson’s affects the whole family and we sometimes forget about the health and well being of the caregiver. As a caregiver, you may feel overwhelmed or stress at any stage of Parkinson’s. Your health and mood may be at risk.
We are all caregivers, care partners or need a caregiver some time in our life in our life. Therefore this edition, Caring for the Caregiver, is for all of us.
Visit the Northwest Parkinson’s Foundation Wellness Center, your place for health, hope and healing. Become a member of this community to learn about lifestyle changes, therapies and professionals that can help the patient and their caregivers along the Parkinson's journey. Sign up to receive Wellness Center updates. Sign Up Here
Visit the Northwest Parkinson's Foundation website and sign up to receive free subscriptions
to the latest world news and event news about Parkinson's. |
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UPDATE for VETERANS WITH PD
VA Publishes Final Regulation to Aid Vietnam Veterans Exposed to Agent Orange
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The Department of Veterans Affairs (VA) on August 31, 2010 published its final regulation establishing Parkinson’s disease, ischemic heart condition, and B-cell leukemia as service-connected disabilities for Vietnam veterans exposed to Agent Orange. The final regulation grants a 100% disability rating for Parkinson's disease, as well as retroactive veteran and survivor payments for qualifying veterans.
Even though the final regulation is published, the regulation is subject to a 60-day review period by Congress before the VA can begin paying benefits for new claims.
The Senate Veterans Affairs Committee is scheduled to hold a hearing on September 23 to review the rule and to discuss how the VA Secretary makes his decision to establish a disease as a service-connected disability. There certainly is no intention for Congress to actually block the implementation of the final rule, but the VA will have to wait 60 days before they can start compensating veterans.
Accessing health care and disability compensation will be easier for qualifying veterans. If a veteran served in Vietnam from January 9, 1962 to May 7, 1975 and now has been diagnosed with Parkinson’s disease, they are presumed to have been exposed to herbicides. The veteran does not have to prove an association between their disease and their military service. The presumption simplifies and speeds up the application process for disability compensation, and all those awarded service-connection will become eligible to join the VA healthcare system.
If you are a Vietnam veteran with Parkinson’s and have not applied for benefits, we encourage you to submit your application for compensation now—even before the VA can start paying claims. For more information about applying for VA benefits and Agent Orange, visit http://www.vba.va.gov/bln/21/AO/claimherbicide.htm For more information about applying for VA benefits and Agent Orange, visit the VA Web site http://tinyurl.com/243gfqe
DID YOU KNOW THAT THE VA HAS A PARKINSON'S DISEASE WEBSITE?
The VA has a website dedicated to information about Parkinson's Disease. The Veterans Affairs (VA) Parkinson's Disease, Research, Education and Clinical Centers (PADRECCs) and the National VA Parkinson's Disease Consortium websites can be accessed at http://www.parkinsons.va.gov/index.asp
For frequently asked question about Parkinson's of the Veterans Affairs Office CLICK HERE |
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PARKINSON ARTWORK --- Creativity and Parkinson's Gallery!
In this internet gallery, you can browse artwork created entirely by people living with Parkinson’s disease (PD) throughout the world. The gallery includes a variety of mediums of creative works - not just paintings, but also prose and poetry, photography, sculpture, crafts, dance and song. http://www.pdf.org/en/galleryReturn to top of this page |
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Imaging advances in Parkinson’s disease
“Imaging in Parkinson’s disease diagnosis has been used primarily to rule out conditions that might mimic Parkinson’s. The traditional thinking is that the Parkinson’s brain appears normal in MRI scans. However, scientists at the University of British Columbia (UBC) MRI Research Centre in Vancouver are challenging this view….” |
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| Should You Get a Brain Scan to Confirm Diagnosis of Parkinson's Disease? |
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NPF's National Medical Director, Dr. Michael Okun, blogs about the recently FDA-approved brain scan for Parkinson's
in this month's "What's Hot in PD?" Dr. Okun explains the pros and cons of brain imaging to confirm a diagnosis of Parkinson's. Click here for more information
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Confused by drug plan changes? Are you in the Doughnut Hole?
SC Office on Aging wants to help.
The S.C. GAP program is ending on July 1, 2010 due to a lack of state funds. Changes in government pharmacy assistance for seniors can lead to confusion and concern.
The SC GAP program, administered by SCDHHS provided certain beneficiaries with Medicare Part D coverage assistance during the coverage gap (commonly called the doughnut hole). When the program began in January of 2006, state funds covered 95% of prescription drug costs for beneficiaries with limited monthly incomes in the doughnut hole. Due to budget cuts over the last four years, reimbursements had been reduced to 40%.
Medicare counselors from the state Office on Aging are available to advise seniors on alternative prescription drug assistance. Some assistance is already on the way to Part D beneficiaries who have entered the doughnut hole. The Center for Medicare and Medicaid Services began sending tax-free $250 rebate checks on June 10. The rebate is the first of several steps to eliminate the doughnut hole by 2020.
For more information on the Office on Aging or to reach a Medicare counselor, call toll free at (800) 868-9095 or visit the agency website at aging.sc.gov
[Information was obtained from the SC Office of Aging website.] |
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US Government Health Care Bill Information
If you have questions about the provisions of the health care changes that apply to you, go to healthcare.gov
The amount of information on this website can be overwhelming, but this site does a good job of pointing you in the direction to topics of specific interest. For example - you can click on "Find Insurance Options", and you will be guided through the recent health care bill insurance changes. |
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How to dispose of meds safely ---
"Every day, 2,500 teenagers use a prescription drug to get high for the first time. However, drug abuse isn't the only risk associated with unused medications. Ingesting expired medications can be harmful. Improper disposal of medications that are no longer indicated or prescribed may lead to accidental ingestion causing drug interactions or adverse drug events. Accidental ingestion by children, the elderly, or pets can also occur." [Information from the "Dispose My Meds" website.]
It is bad when --- Leftover medicine (meds) are flushed down the drain, polluting our lakes and rivers, as well as our drinking water. More than 100 different pharmaceuticals have been detected in lakes, rivers, reservoirs and streams throughout the world.
It is bad when --- Meds are kept at home, creating a risk for small children and teens to poison themselves. Each year in the United States, more than 71,000 children aged 18 and younger are seen in emergency rooms for unintentional overdoses of prescription and over-the-counter drugs.
It is bad when --- Passing along to a family member or to a friend, encourages people to self-medicate without a prescription.
To help dispose of unused medications properly, the National Community Pharmacists Association (NCPA®) has launched "Dispose My Meds" campaign. DisposeMyMeds.org is an online resource to help you to find medication disposal programs at the local independent community pharmacy near you. The National Community Pharmacists Association, its members and partners are offering you safe disposal of unwanted consumer medications in local community pharmacies around the country.
To find a participating community pharmacy near you CLICK HERE |
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Good vibrations for Parkinson's
One million Americans are living with it, and 60,000 people were diagnosed last year. Parkinson's disease slowly steals a person's control over their body. Now, some doctors are looking into the past to devise treatments for the future. It's all about vibrations. CLICK HERE
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IMPORTANT TAX EXEMPTION NEWS!
SC Application for Exemption Form PT- 401-1
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SC Parkinson patients, you may be eligible for SC state tax exemptions on your home residence [Section B2a] and on two motor vehicles [Section B27] owned or leased by those persons required to use wheelchairs are exempt from state taxes.
For information: SC Department of Revenue “Application for Exemption Form PT-401-1” and its Instruction Sheet.
Web Page http://www.sctax.org/Forms+and+Instructions/property/default.htm
-- Note: Go down the list and look for (you can click on these links)
Application for Exemption Form PT401
and for Application for Exemption Instructions PT401 Instr
Phone for Forms Orders 1-800-768-3676
Phone for Individual Income Tax Info 898-5709
Phone for Exempt Property Tax Info 898-5471 / 898-5492 / 898-4995 |
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Mayo Clinic Develops Potential New Therapy to Stop the Progression of Parkinson's Disease
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The Mayo Clinic has on-going research regarding Parkinson's. Here is an sample article showing the types of Parkinson research the clinic performs and the type of information about Parkinson's available on their web site..
Mayo Clinic researchers have developed a method to reduce the production of alpha-synuclein in the brain. Alpha-synuclein is a protein that is believed to be central to the cause of Parkinson's disease. All patients with Parkinson's disease have abnormal accumulations of alpha-synuclein protein in the brain.
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The Tip Jar - By the Northwest Parkinson's Foundation
Welcome to the Tip Jar. Over the many years of working within the Parkinson's community the Northwest Parkinson's Foundation has heard some wonderful tips and insights on living with Parkinson's day-to-day. On this page they have compiled some of those helpful hints. These user tips are for the patient, family member and caregiver, and are meant to help improve the quality of life for those touched by PD. You can also add your own tip. |
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mySChospital - You can research hospitals before receiving care
As a patient you play a key role in making decisions about your hospital care. If patients have the opportunity to research hospitals before receiving care, perhaps some situations and complaints could be avoided. That’s where “mySChospital” comes in. This Web site provides snapshot information about the quality, safety of care, and performance in key areas as provided by roughly 65 South Carolina hospitals (including the midlands Lexington Medical Center hospitals, the Sisters of Charity Providence Hospitals, and the Palmetto Health hospitals). With this information, you can see how often each hospital provides recommended care for patients with certain conditions or the progress hospitals have made towards national patient safety goals. This information may be used by the public to compare how different hospitals perform and to promote quality improvement efforts within hospitals.
In an effort to provide excellence in service, quality and safety of care to their patients, South Carolina hospitals have voluntarily collected and reported standardized data on "mySChospital." This public reporting is guided by the South Carolina Hospital Association's Quality and Patient Safety Advisory Council and the Every Patient Counts: The SC Partnership to Advance Patient Safety and Quality. The mission of "mySChospital" is to develop consumer-focused initiatives that will provide reliable, valid measures of health care in South Carolina; and to aid the selection of quality health care and quality improvement activities within the hospital field. |
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The Neglected Side of Parkinson's Disease by Rothstein, Ted L Olanow, C Warren
The following is an excerpt from an article on the Northwest Parkinson Foundation Web Site.
"Shaking and slowness of movement may be the most obvious symptoms, but they are often not the most debilitating ones. Parkinson's disease may not be an epidemic, but it's more common than you might think. Approximately 1,000,000 Americans suffer from the illness, with 60,000 new cases appearing each year in the United States alone."
"This neurodegenerative disorder, which is both progressive and incurable, usually begins around age 60, so neurologists believe that its prevalence is likely to increase dramatically with the graying of the nation's population. But Parkinson's disease shouldn't be thought of only as an affliction of old age; it can also strike considerably earlier in life, a fact that has become well known through such prominent examples as Michael J. Fox (diagnosed at age 30) and Muhammad Ali (at age 42)."
Click Here to read the complete article of one of the best discussions of Parkinson's Disease. |
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Selected Herb-Drug Interactions
Many patients are self-medicating with herbal products, and more and more people are at risk for interactions among supplements or between supplements and prescription drugs. Provided by the University of Michigan Health System is a list of herbs that can interact with medications you may be taking. This information is approved and/or reviewed by U-M Health System providers but it is not a tool for self-diagnosis or a substitute for medical treatment. From AARP Magazine July & August 2008 |
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Disaster Resources for the Public
No one likes to think about disasters, whether natural or
man made, but thinking ahead and preparing, together with
knowledge about first steps, can save you and your family treasures from ruin.
The Heritage Emergency National Task Force is a partnership of 41
national service organizations and federal agencies created to protect
cultural heritage from the damaging effects of natural disasters and
other emergencies. The Task Force was founded in 1995 and is
co-sponsored by Heritage Preservation and the Federal Emergency
Management Agency.
While the
Heritage Emergency National Task Force has mainly developed a collection of handy tools and resource lists designed especially for libraries, museums, historic sites, and arts organizations, etc. for disaster aid and developing relationships with emergency responders, many of these practical application tools also apply to individuals when faced with disasters like hurricanes, fire, floods, etc. Below is a sample of the information available.
Hurricane Safety Flyer Hurricane information from the National Weather Service (PDF).
Essential Records for Families: What you need to know before you evacuate A handy checklist and reference guide from The Georgia Archives (PDF).
Save Your Treasures the Right Way Hurricanes and floods harm treasured possessions like photos and other keepsakes. Sometimes people discard family heirlooms that could have been saved or, lacking good advice, make the damage worse. This doesn't have to happen!
Preparing, Protecting, Preserving your Family Treasures Simple instructions, as well as links to more comprehensive information for preparing, protecting, preserving many types of family treasures. |
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Parkinson Disease Tulip Petition: Symbol for PD Awareness
The tulip — a red flower with distinctive leaves shaped like the letters “p” and “d” — was designed by a young onset person with Parkinson’s (PWP) from Washington state — Karen Painter. Grassroots support for making her tulip the national symbol for Parkinson’s awareness is growing.
Sign the petition to show your support of the PDTulip as the US national symbol for Parkinson's awareness. Using the PDTulip transcends artificial boundaries created by the many Parkinson's organizations.
All organizations and volunteers are encouraged to be proud of their organizational affiliation - use your orgs' symbol(s) with pride. But also use the PDTulip as a symbol that represents ALL people with Parkinson's and ALL organizations and ALL scientists in the US who are working for the cure. Please show your support of the PDTulip for Parkinson's awareness.
There is a website page (www.pdtulip.com) enabling people to easily download the tulip graphic in a variety of sizes for use on their print materials and slide shows.
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ODDS & ENDS - A place where we put anything that doesn't fit anywhere else on our website
BOOKS & PUBLICATIONS - What we are recommending for reading and where to find them
VIDEOS - What we are watching on the internet and where to find them
FAQS [Frequently Asked Questions] - Answers to some of the questions that people have sent us
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